Download Annual Report Summary

Our Community Drives Our Vision.

Message from the President/CEO

Diana Gray, MA
President and Chief Executive Officer
Hydrocephalus Association
Jason Preston
Chair, Hydrocephalus Association Board of Directors

"HA started in 1983 in order to support parents of children with hydrocephalus, so looking to the needs of our community is deep in our DNA. Understanding how hydrocephalus affects people in their daily lives has a huge impact on how we spend our time and our resources helping our friends and chasing a cure. The way we've managed to move the needle together over the last year is inspiring to me, and hopefully to you as well."

 

Research

The Hydrocephalus Association is focused on funding high-quality, high impact research and building the hydrocephalus research community. Our impact can be seen far and wide throughout the hydrocephalus research field.

Over the last 13 years, HA has injected $14M in grant money to scientists. In turn, these scientists have invested this initial funding into their research to help them secure even greater funding amounts through the National Institutes of Health (NIH), the Department of Defense (DOD) and other foundations. HA’s initial investment into research has multiplied to $87M in total funding.

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Learn More About Our Research > 

Department of Defense Research Funding
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Ten Innovator Awards Granted to Scientists for Their Groundbreaking Research
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Community Research Priorities
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Improving Cognitive and Psychological Outcomes in Hydrocephalus
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Nurturing Future Researchers
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Invested in Research Since 2009
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$13.8 million+

Preclinical Drug Therapies Tested
team

12

total grants awarded to scientists
hands

55

people have joined HAPPIER, our Hydrocephalus Patient Registry
Target

900

secured in Additional
Funding by HA Researchers
Happier

$71 million

Under Pressure

The Hydrocephalus Association is focused on funding high-quality, high impact research and building the hydrocephalus research community. Our impact can be seen far and wide throughout the hydrocephalus research field.

Learn More About Our Under Pressure Campaign > 

Together We Can Transform Lives
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Campaign Leadership
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Pressure Points
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Critical Research Opportunities
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Help Us Relieve This Pressure!
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Support & Education

Providing resources and support to help you on your journey with hydrocephalus.

For over 35 years, we’ve been the place our community turns to when they need guidance or have questions about hydrocephalus. Whether it's by providing support through our Helpline, offering free educational resources, or fostering meaningful connections through our Community Networks, helping our community is what we love to do. In 2022, we continued to be a source of hope and information for those impacted by hydrocephalus.

Learn More About Our Support & Education Efforts >

Academic Scholarships Awarded to 13 Young People
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Life-changing Impact at Hydrocephalus Conference
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Brand New Support Services
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Support Touches
touches

2,818

HA Community Network virtual social gatherings and educational meetings
teacher

215

HA Community Networks
community

49

Doctors in HA’s
Physicians Directory
doctor

599

Community Impact

Our community drives our vision. Each year, across the country, people in our community come together to raise awareness and education for hydrocephalus and to raise funds for a cure. Learn more about some of the members of our community and how they are working hard to drive our vision.

Learn More About Our Community Connections >

Gary Chaffee
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Archery for Avery
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End Hydrocephalus Bike Night
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Reefs Run
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WALK to End Hydrocephalus

Every year, people across the country come together to connect with their peers, raise funds for a cure, and celebrate the hydrocephalus community at a WALK to End Hydrocephalus. WALK events made an extraordinary comeback this year, post-pandemic, with many new families, an increase in sponsorships, and one brand new event in Wisconsin.

Learn More About Our WALKS >

2022 WALK to End Hydrocephalus Raises $1.8 Million
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Top 10 WALK Sites
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Top WALK Teams
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Held across the US (in-person and virtual)
walks

41 Walks

helped raise money at a walk
team

830 Teams

people registered for a WALK
crowd

7120 People

Raised for Hydrocephalus research, support & education
moneyresearch

$1.8 Million

Advocacy

The Hydrocephalus Association is the leading voice for the hydrocephalus community on Capitol Hill, successfully fighting for legislation that increases federal research dollars for hydrocephalus and improving the lives of those living with the condition.

Learn More About Our Advocacy Efforts >

Hydrocephalus Once Again Receives Research Funding by the Department of Defense
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Congressional Hydrocephalus Caucus Supports Hydrocephalus Awareness Month
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HA Spearheads New Coalition for Transition
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Financials

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The Hydrocephalus Association has earned high marks from the GUIDESTAR, CHARITY NAVIGATOR, AMERICA’S BEST CHARITIES and the NATIONAL HEALTH COUNCIL. See all of our Charity Ratings. For more on our financials, visit our website.

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Connect with Us!

Follow us on social media to keep up with the latest hydrocephalus events, research, and inspirational stories.

Connect

The Hydrocephalus Association depends on concerned individuals like you to help us raise funds to support critical research and programs that improve the quality of life for people living with hydrocephalus and, ultimately, find a cure.