WALK to End Hydrocephalus

2022 WALK to End Hydrocephalus Raises $1.8 Million

Thanks to our amazing community and passionate volunteers, we were able to hold 41 WALK to End Hydrocephalus™ events this year. WALK events made an extraordinary comeback this year, post pandemic, with many new families, an increase in sponsorships and one brand new event in Wisconsin. In total, the WALKs raised $1.8M, with 830 teams participating and 7,120 registered participants and volunteers.

The top WALK to End Hydrocephalus™ site this year was ORANGE COUNTY! The event took place in Huntington Beach, CA, on October 15th and raised over $165K! The WALK was co-chaired by Erin and Pieter Berger, Heather Kluter and included 31 family and four corporate teams.

The corporate teams included:

  • MVE+Partners (raising $29.4K)
  • Brookfield Cares (raising $3.6K)
  • Muhonen and his CHOCalongs (raising $4.5K)
  • Medtronic (Raising $2.2K).

This year, one of our smaller WALK events in Louisville, KY, beat their overall goal before the WALK even took place. Led and encouraged by volunteer leader, Tonya Waelde, they raised $10,725 with our HundredX survey program. These quick and easy surveys can be completed in less than a minute and each one raises money for the Hydrocephalus Association. What a great way to increase their total impact with a creative fundraising push in advance of the WALK season. Overall, the Louisville WALK event completely blew away their $10K goal by raising a total of $24K! Keep your eyes open for our HundredX launch in early June 2023! Surveys will be open from June 12-July 11.

Erin Berger
Orange County Hydrocephalus Co-Chair and WALK Participant

”After a couple of years of walking virtually, Orange County Hydrocephalus WALK participants were thrilled to be able to return to an in-person walk against the beautiful backdrop of Huntington Beach and the Pacific Ocean. Once again, family and friends rallied to support loved ones who deal with the daily challenges presented by hydrocephalus.  Countless volunteers, physicians, medical staff, therapists and local and national sponsors also participated to make this event incredibly rewarding and financially successful.  This event has not only become one of the more successful Hydrocephalus Association fundraisers, but it has also become an incredible “friendraiser” for the cause.”


(based on amount raised)

Orange County

Long Island


Los Angeles

South Florida

National Capital



Western NY



Led by Erin & Pieter Berger and Heather Kluter

Led by Carissa Bentley & Melissa Arato

Led by Betsy Conyard

Led by Jen Pope & Tania Hesie

Led by Lisa Piazzese, Kasey Andrew, Eileen Rodger

Led by Susan Fiorella & Amanda Garzon

Led by Kristin & Nick Hoffman

Led by Heather Bruen, Britta Heinitz and Sarah Besuegli

Led by Larry & Margie McKenzie, Kelly Zientara and Stacey Fonagy

Led by Jodi Heston, Ashley Sebastionelli, Gina Moorhead, David & Sarah Kellogg


(based on amount raised)

Surf 4 Shea

Tyler's Warriors

Team Rain

Team Alex

Team Spenser

Jake Town

MVE + Partners, Inc.

Charlie's Angels

Team Owen

Hydro Cure

Team Mary

Orange County

Long Island

Los Angeles

South Florida

South Florida


Orange County

Los Angeles


Long Island













Thank You to Our 2022 WALK Sponsors