CHANGE MAKERS
Message from the
President/CEO & Board Chair
Diana Gray
President and Chief Executive Officer, Hydrocephalus Association
"Much of what we accomplished in 2018 was possible thanks to the many volunteers, partners and benefactors who have supported our efforts to find a cure for hydrocephalus and improve the lives of those living with the condition. That's why we're dedicating this Annual Report to you - the change makers of 2018."
RESEARCH
Our vision is a world without hydrocephalus.
That’s why in 2018, we continued to fund high impact research, supporting three research networks, one patient-powered registry, and awarding 8 grants to bright scientists to improve the quality of life for people with hydrocephalus and find a cure. Since 2009, we’ve invested over $9 million in cutting-edge research, making us the leading private funder of hydrocephalus research.
NIH Program Announcements
Specifically Targeting Hydrocephalus
HANDS Membership Increased
Return on Investment
Invested in New Research Grants
Amount Raised for PHH Research
EDUCATION & SUPPORT
Since 1983, the Hydrocephalus Association has been the place to turn to for individuals and families impacted by hydrocephalus.
We offer resources and support for people living with hydrocephalus and their loved ones. In 2018, we offered over 40 educational resources, services, and programs that continue to provide life-changing support to people dealing with the challenges of hydrocephalus – everything from webinars and videos to blogs and booklets. We also provided one-on-one support to 4,514 individuals via our toll-free hotline, email, and online channels and connected local families through our 44 Community Networks.
Support Touches
Webinar Views
HA Community Networks
Education Days HELD
Medical professionals
in HA's Physicians Directory
VOLUNTEERS
MAKING AN IMPACT
Two words come to mind when we think about our volunteers – passion and dedication.
We are fortunate to count on the support of over 200 volunteers across the country who help organize our WALK to End Hydrocephalus events, provide support through our HydrocephalusCONNECT Peer Support program, and organize fundraising events. Our volunteers are ambassadors for our mission, helping us raise awareness and much-needed funds for our research, education, advocacy and support programs.
Held across the US
helped raise money at a walk
participated in a HA Walk
Raised for Hydrocephalus research, support & education
For one night in Los Angeles, 700 people got to hear the hilarious antics of Tracy Morgan and several other comedians while raising awareness and funds to support the Hydrocephalus Association’s mission. “In Stitches: A Night of Laughs” took place April 27 in Los Angeles and was HA’s first-ever comedy fundraiser.
ADVOCACY
The Hydrocephalus Association is the leading voice for the hydrocephalus community on Capitol Hill, successfully fighting for legislation that increases federal research dollars for hydrocephalus and improves the lives of those living with the condition.
FINANCIALS
For more details, visit our website.
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