Message from the President/CEO
Diana Gray, MA
President and Chief Executive Officer, Hydrocephalus Association
"2019 was an incredible year for the Hydrocephalus Association and none of it would have been possible without the amazing support of our community. Your strength and resilience inspires us every day to work harder towards finding a cure and new treatment options."
Brett Weitz
Chair, Hydrocephalus Association Board of Directors
"I'm so proud to be part of an organization that helps individuals and families throughout their journey with hydrocephalus. Even when faced with a global pandemic, we've been able to continue serving our community with valuable and timely resources. And I know we will continue to do what we've always done -- to innovate and succeed and to be on the frontlines for families who have always leaned on us for support."
RESEARCH
Our vision is a world without hydrocephalus.
2019 marked 10 years since the launch of our Research Program. In 2009, we began investing in high-impact research because we wanted a different future for people living with hydrocephalus. Now, we are the largest, private funder of hydrocephalus research in the country, investing over $11 million in research and awarding 40 grants to brilliant scientists.
Invested in New Research Grants
HANDS Membership Increased
HAPPIER membership
doubled in participants to
secured in Additional
Funding by HA Researchers
EDUCATION & SUPPORT
Since 1983, the Hydrocephalus Association has been the place to turn to for individuals and families impacted by hydrocephalus.
Whether it’s a parent who’s just received news that their child has hydrocephalus or an adult concerned about a new symptom they’re experiencing, helping people on their journey with hydrocephalus is at the heart of what we do. In 2019, we were fortunate to be able to provide one-on-one support to nearly 5,000 people who contacted us through our free Helpline, and we interacted with over 1,500 people at 18 events across the country, ranging from local health fairs to the exhibit hall at the American Academy of Neurology Brain Fair.
Support Touches
Video Views
HA Community Networks
Outreach Events
Held in 2019
Doctors in HA’s
Physicians Directory
HA WALK
Every year, people across the country come together to connect with their peers, raise funds for a cure and celebrate the hydrocephalus community at a WALK to End Hydrocephalus.
2019 was an incredible year for the WALK to End Hydrocephalus, with over 15,000 people participating in a WALK to End Hydrocephalus in 44 locations across the country. For the first time in the history of the WALK program, we raised over $2 million for HA’s mission! This is due in large part to the thousands of passionate volunteers who organize and run WALKs in their local city.
Held across the US
helped raise money at a walk
participated in a HA Walk
Raised for Hydrocephalus research, support & education
Over 400 people joined us in Los Angeles for our 2nd annual In Stitches comedy fundraiser featuring Emmy Award-winning comedian and host, Conan O’Brien. The event not only raised much-needed awareness of our cause, it also raised over $300,000 for hydrocephalus research, support and education programs.
ADVOCACY
The Hydrocephalus Association is the leading voice for the hydrocephalus community on Capitol Hill, successfully fighting for legislation that increases federal research dollars for hydrocephalus and improves the lives of those living with the condition.
FINANCIALS
The Hydrocephalus Association has earned high marks from the BETTER BUSINESS BUREAU, GUIDESTAR, CHARITY NAVIGATOR and the NATIONAL HEALTH COUNCIL.
See all of our Charity Ratings. For more on our financials, visit our website
THANK YOU TO OUR
CORPORATE SPONSORS
